Under the Knife
Edited to add a link for a baclofen pump
1. Nissen Fundoplication at 2 years of age
2. Gtube Surgical Placement
3. Submandibular Salivary Gland Removal
4. Left Hip Repair
5. Oral Surgery
6. Right Hip Repair
7. Hip Hardware Removal
8. Nissen Fundoplication Repair - Laparoscopy
9. Left Hip Re-repair
10. Baclofen Pump Placement
11. Exploratory biopsy and baclofen pump removal
12. Baclofen Catheter Removal
13. Second Biopsy
I'm so glad that it's only been thirteen surgeries - I know of so many others that are not that fortunate.
Labels:
Thursday Thirteen
8 comments:
I've told you before that I have many friends who are like Tyler. I'm honored to call each one friend.
I do have a lot of questions to ask God when I get back home.
I have a question. Yesterday my four year old got her Hep A vaccine. You know those little papers they give you with info about why you need this shot, etc? Well, on the back it says if you have a severe reaction, the government helps pay for (XXX) I can't remember what, relative to damages incurred. I know I am not telling you anything you don't know. But I just never noticed this little note before, and I immediately thought of Ty, and you, because i was telling my mom about your situation b/c we were talking about the costs of my dad's treatment, etc. And I wondered if it is really any substantive help to you at all? I hope that isn't too personal. I guess I just thought it was a good thing the Health and Human Services does provide, not that it is any true compensation, but it is something? Thoughts?
B-I'm with you. Lots of tricky questions....
I have heard of so many shunt revisions. I'm so glad that we too have minimal surgeries. I am so glad we don't have a shunt, or that we are anticipating lots of surgeries.
Hips, probably and maybe baclifin, but.. other than that- none that I am aware of.
he does have mild kyphosis.
I love coming here.
Our boys look a lot a like, I think-
b- yep, yep, yep.
EW - yep, we went through that process. it was quite the nightmare and drug out for 5 years. It provides for his health care needs (thank goodness). Let's just say I have no sympathy for big business when they want to limit pain and suffering to $250Gs. It doesn't even come close to what some people suffer.
Also, they award those things on a sliding scale. Death=$250G, and everything else pretty much pales in comparison to that. Okay, off my soap box now. (I do think vaccines are a necessary 'evil', I wish science was better at lessening the risks).
Lisa - I love your latest post, I struggle with those same feelings. Balance is a tough thing.
baclofen pump?
I've heard parents rave about those!
How's it working for you?
I'm sorry.....I'm a couple of seconds behind....Tyler had it removed. Maybe I ought to go back and read the archives. :/
He had it out because his tumor developed, but otherwise it was wonderful and we really miss it. His tone is so much harder to manage now.
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