tag:blogger.com,1999:blog-9131387233567607743.post6074605680403637099..comments2023-08-10T07:40:17.125-06:00Comments on Tyler's Triumph: Under the KnifeMrs. Ohttp://www.blogger.com/profile/14159440829600935461noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-9131387233567607743.post-18134787808604059292007-08-19T10:29:00.000-06:002007-08-19T10:29:00.000-06:00He had it out because his tumor developed, but oth...He had it out because his tumor developed, but otherwise it was wonderful and we really miss it. His tone is so much harder to manage now.Mrs. Ohttps://www.blogger.com/profile/14159440829600935461noreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-8318720456779980362007-08-19T10:23:00.000-06:002007-08-19T10:23:00.000-06:00I'm sorry.....I'm a couple of seconds behind....Ty...I'm sorry.....I'm a couple of seconds behind....Tyler had it removed. Maybe I ought to go back and read the archives. :/b.https://www.blogger.com/profile/05200037742651165832noreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-3946336919849343052007-08-19T10:21:00.000-06:002007-08-19T10:21:00.000-06:00I've heard parents rave about those!How's it worki...I've heard parents rave about those!<BR/>How's it working for you?b.https://www.blogger.com/profile/05200037742651165832noreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-4159046382818730332007-08-16T08:25:00.000-06:002007-08-16T08:25:00.000-06:00baclofen pump?baclofen pump?b.https://www.blogger.com/profile/05200037742651165832noreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-83081862373717671182007-08-16T00:55:00.000-06:002007-08-16T00:55:00.000-06:00b- yep, yep, yep.EW - yep, we went through that pr...b- yep, yep, yep.<BR/><BR/>EW - yep, we went through that process. it was quite the nightmare and drug out for 5 years. It provides for his health care needs (thank goodness). Let's just say I have no sympathy for big business when they want to limit pain and suffering to $250Gs. It doesn't even come close to what some people suffer.<BR/><BR/>Also, they award those things on a sliding scale. Death=$250G, and everything else pretty much pales in comparison to that. Okay, off my soap box now. (I do think vaccines are a necessary 'evil', I wish science was better at lessening the risks).<BR/><BR/>Lisa - I love your latest post, I struggle with those same feelings. Balance is a tough thing.Mrs. Ohttps://www.blogger.com/profile/14159440829600935461noreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-64329397099458406972007-08-15T21:36:00.000-06:002007-08-15T21:36:00.000-06:00I have heard of so many shunt revisions. I'm so g...I have heard of so many shunt revisions. I'm so glad that we too have minimal surgeries. I am so glad we don't have a shunt, or that we are anticipating lots of surgeries.<BR/><BR/>Hips, probably and maybe baclifin, but.. other than that- none that I am aware of.<BR/><BR/>he does have mild kyphosis.<BR/><BR/>I love coming here.<BR/><BR/>Our boys look a lot a like, I think-Lisa M.https://www.blogger.com/profile/01015215401481176075noreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-63202541156699239512007-08-15T21:28:00.000-06:002007-08-15T21:28:00.000-06:00I have a question. Yesterday my four year old got ...I have a question. Yesterday my four year old got her Hep A vaccine. You know those little papers they give you with info about why you need this shot, etc? Well, on the back it says if you have a severe reaction, the government helps pay for (XXX) I can't remember what, relative to damages incurred. I know I am not telling you anything you don't know. But I just never noticed this little note before, and I immediately thought of Ty, and you, because i was telling my mom about your situation b/c we were talking about the costs of my dad's treatment, etc. And I wondered if it is really any substantive help to you at all? I hope that isn't too personal. I guess I just thought it was a good thing the Health and Human Services does provide, not that it is any true compensation, but it is something? Thoughts?<BR/>B-I'm with you. Lots of tricky questions....Elizabeth-Whttps://www.blogger.com/profile/12215621448451413460noreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-46860430574632591552007-08-15T20:19:00.000-06:002007-08-15T20:19:00.000-06:00I've told you before that I have many friends who ...I've told you before that I have many friends who are like Tyler. I'm honored to call each one friend. <BR/>I do have a lot of questions to ask God when I get back home.b.https://www.blogger.com/profile/05200037742651165832noreply@blogger.com