tag:blogger.com,1999:blog-9131387233567607743.post7113791485571056697..comments2023-08-10T07:40:17.125-06:00Comments on Tyler's Triumph: On decisionsMrs. Ohttp://www.blogger.com/profile/14159440829600935461noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-9131387233567607743.post-45803613563600679492009-07-13T20:33:54.988-06:002009-07-13T20:33:54.988-06:00Hey there. I just randomly stumbled onto your blog...Hey there. I just randomly stumbled onto your blog from a friend of a good friend's blog (first my friend Kaerlig's blog then to the Jet Set blog then here from there...make sense?) Anyway, I just was reading this post and was wondering if you have any advice for treating seizures. Our 2 year old has very rare seizures that are hard to control with medicine and we are having NO luck. They are clustered tonic spasms.<br /><br />He's taking 60 MG of Topamax twice daily but with no improvement. We're also giving him fish oil, coconut oil and just started chiropractic treatments. Any advice? <br /><br />Good luck with all you're doing for your son. Sending positive vibes your way!Emilie and Brandenhttps://www.blogger.com/profile/05591639201691195161noreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-9529077504752577262009-06-18T18:32:58.721-06:002009-06-18T18:32:58.721-06:00Hey, read my comments on my blog on Keppra...and w...Hey, read my comments on my blog on Keppra...and we REALLY love our doctors in St. Louis. Have you ever considered a second opinion? Might give you a few better options???<br />You're in our prayers.clairehttps://www.blogger.com/profile/18242158508026924763noreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-29176625255582343572009-06-16T00:32:39.434-06:002009-06-16T00:32:39.434-06:00Ugh....such a difficult choice :(
Life only gives...Ugh....such a difficult choice :(<br /><br />Life only gives us what we can handle and you are such an incredibly strong person!<br /><br />Give it to God....<br /><br />My prayers are with you 0:)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-43469372765105032602009-06-15T09:46:24.179-06:002009-06-15T09:46:24.179-06:00When we don't know what to say and are too far...When we don't know what to say and are too far away to put our arms around each other, what can we do?<br /><br />I will pray for you. <br /><br />Having seen through the years the grace with which you've balanced your family's life together, I fully trust you will make the decision that works best.Emma Jhttps://www.blogger.com/profile/05445947251876802806noreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-23402519271713725192009-06-15T00:58:50.626-06:002009-06-15T00:58:50.626-06:00We had a similar scenario play out with Ellie. She...We had a similar scenario play out with Ellie. She had fevers of 104-105 for an entire week, but they also responded to Motrin. Until one night they didn't. We took her in to the ER, they gave her Motrin and voila! it worked.<br /><br />I like the trial idea. My heart says no way on the pump, but my brain tells me it's the logical thing to do.Mrs. Ohttps://www.blogger.com/profile/14159440829600935461noreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-64553521751719126862009-06-14T23:54:21.822-06:002009-06-14T23:54:21.822-06:00We'll keep your family in our prayers. You are...We'll keep your family in our prayers. You are truly amazing and I know you'll figure out what to do that's best AND right. Tyler is so blessed to be in your family...Tebbs Familyhttps://www.blogger.com/profile/16611682028804636758noreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-85141945593267848112009-06-14T23:30:43.025-06:002009-06-14T23:30:43.025-06:00P.S. Dean used to be the typical guy who could hav...P.S. Dean used to be the typical guy who could have a partially-severed limb and tell you that it didn't need stitches, so I prefer this new overcautious version of him.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-36555064557533183232009-06-14T23:27:04.612-06:002009-06-14T23:27:04.612-06:00These things are so hard even on a smaller scale. ...These things are so hard even on a smaller scale. Yesterday while I was away, Henry woke up from a nap screaming that his foot hurt. He'd actually been telling us his foot hurt earlier in the week (after falling) but then seemed fine, but Dean was concerned enough that he took him to Urgent Care. But their x-ray machine wasn't working so they sent him to a different Urgent Care place, and by then Henry was running around happily and Dean said the doctor seemed a little baffled that Dean had even brought Henry in, and Dean felt a little foolish. But you never want to ignore a real problem.<br /><br />So, so hard. Especially when the stakes are so much higher. I'll pray that you'll be able to feel good about a course of action. (Could you test it out by making a tentative decision and seeing how it feels for a couple of days?)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-12405422257724038622009-06-14T20:27:02.770-06:002009-06-14T20:27:02.770-06:00Prayers for your comfort and a clear mind with whi...Prayers for your comfort and a clear mind with which to make this decision!Heffalumphttps://www.blogger.com/profile/13166154112206680302noreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-83829049826863749642009-06-14T16:51:29.417-06:002009-06-14T16:51:29.417-06:00Best wishes and prayers for you. Whatever you choo...Best wishes and prayers for you. Whatever you choose, I hope you will feel clarity and reassurance and that all will go well.compulsive writerhttp://compulsivewriter.comnoreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-2383889491759446672009-06-14T15:05:57.025-06:002009-06-14T15:05:57.025-06:00Your such a good mom, I can't imagine having a...Your such a good mom, I can't imagine having all the responsibility you do with Ty. You'll make the right decision, Ty's lucky to have you.Biesinger Famhttps://www.blogger.com/profile/12403631699464791043noreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-84231631620284534342009-06-14T14:51:02.167-06:002009-06-14T14:51:02.167-06:00Wow--there certainly isn't a clear choice.
Yo...Wow--there certainly isn't a clear choice. <br />You'll be in my prayers.Elizabeth-Whttps://www.blogger.com/profile/12215621448451413460noreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-77774721477447751722009-06-14T14:03:51.838-06:002009-06-14T14:03:51.838-06:00I didn't know you had this blog. Thank you for...I didn't know you had this blog. Thank you for providing this story here.<br /><br />Like b., I will pray for you and your family.Kristina P.https://www.blogger.com/profile/16144488639100871226noreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-34619705196790623162009-06-13T23:43:41.318-06:002009-06-13T23:43:41.318-06:00Thank you! It's almost sixes.Thank you! It's almost sixes.Mrs. Ohttps://www.blogger.com/profile/14159440829600935461noreply@blogger.comtag:blogger.com,1999:blog-9131387233567607743.post-88569430973817946032009-06-13T23:41:59.782-06:002009-06-13T23:41:59.782-06:00I will pray for an answer with you...it's a to...I will pray for an answer with you...it's a toughie.b.https://www.blogger.com/profile/05200037742651165832noreply@blogger.com